Wednesday, 1 August 2012

The All Clear


I've just come through another series of medical tests, examinations and reviews. These have ranged from the simple (various blood tests) to the more onerous (collecting all my urine for 24 hours in a large plastic container - to test my kidney function). At first I wondered why they had given me such a big bottle, but later I began to be concerned that I would fill it to overflowing. In the end it reached the brim, a whopping three litres.

I have most of these medical tests every six months. They are all mentally and emotionally troubling, especially when you are waiting for the results: each test could signify that an important part of you is not working properly (after all, I only have one kidney now).

By far the worst is the CT scan. This is to check whether there is any evidence of the return of the disease.

The scan itself is no real problem. You come to the hospital an hour before the appointment and steadily drink a large jug of clear fluid. It has an aniseed taste. The fluid is called contrast, it contains metal particles and helps to clarify the images taken of your soft tissues. Then you lie down with your arms above your head on a slim bed in front of an enormous white ring doughnut. This is the scanner. The radiologist goes to the control room. Suddenly the bed slides into the centre of the scanner. It feels a bit claustrophobic. Then a strange mechanical voice tells you to hold your breath. The scanner spins and whirrs like an aero engine. A little panel at eye level counts down in seconds and the voice tells you to breathe. You go through this procedure several times and then the scan is over.

The weeks leading up to your scan are filled with anxiety. And afterwards it gets worse. The stress is intense, until you hear the results. For you know that if the disease did return it would most likely be fatal.

After the scan is done the images are assessed by a consultant radiologist and a report is written for the medic who requested the scan. The report is usually done within 24 hours and uploaded to the hospital information system. It is the responsibility of the medic requesting the scan to relay the results to the patient.

The result of my latest CT scan was all clear. A fantastic relief. And all the other test results were normal too. That means I'm out of the clutches of medics for the next six months.

But I didn't receive this news from the medic who requested my scan, my Urology consultant. Indeed, I still haven't been contacted by him. And I had the scan almost four weeks ago.

By chance I found out through a short-cut. One of my GP's has special access to the hospital information system and he logged in and downloaded the scan report for me a few days after it was posted. Such access for GP's is under trial in Belfast, I believe it is intended to become the norm.

If I was still waiting to hear the result of my scan (by letter from my consultant) I'm sure I would by now have become very ill due to prolonged stress. And of course this would be highly detrimental to my longer-term health.

Communicating with out-patients is a big weakness of the NHS. Last year, when I was an in-patient in the same hospital (Belfast City), I was given the results of each of my scans within 24 hours.


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